Mr —: Dravet Syndrome – Grateful for Your Support!

The House of Bruar GB • Jun 6

The House of Bruar sent this email to their subscribers on June 6, 2024.

5K EVERY DAY IN THE MONTH OF MAY

Over £23,500 Raised!

Last month,\xa0Tom Birkbeck and\xa0a dedicated team of friends and family\xa0embarked\xa0on a challenge to run, cycle, or swim 5km every day throughout the month of May. This was done to raise money for\xa0a small charity called Dravet Syndrome UK (DSUK), all in the name of Tom's\xa0six year old godson\xa0Freddie Truelove.

Thank you so much to everyone who donated! We are extremely grateful and humbled by all the support\xa0received. If you’ve been meaning to donate, there is still time:

JUST GIVING
DONATE HERE

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DRAVET SYNDROME UK

How Your Kind Donations Will be Spent

Although a cure for Dravet Syndrome remains elusive, ongoing research in genetic epilepsy brings us closer to this goal through advancements in gene therapy. Unfortunately, funding for rare syndromes like Dravet is often inadequate, but\xa0with the support of the community and the official charity, Dravet Syndrome UK, we continue to push the cause, and raise as much money as we can specifically for the research arm of the charity.

About Freddie

Six year old Freddie Truelove was diagnosed with Dravet Syndrome in 2018, following 3 prolonged seizures at only 6 months old. Dravet Syndrome is a genetic epilepsy, meaning he will not 'grow out' of the seizures, and there is currently no cure.

Despite trying 18 different anti-epileptic medications, undergoing surgery, and living on a medical ketogenic diet, Freddie continues to have frequent seizures. In December 2023 alone, Freddie had to endure over 100 tonic-clinic seizures and countless myoclonic, absence and prolonged focal seizures.

Thanks again to all our lovely customers who donated towards this incredible cause, we really appreciate it! There is still time to donate if you haven't had a chance yet.

JUST GIVING
DONATE HERE